Clinical psychologists’ response to bereavement in adults with intellectual disability
Keywords:
intellectual disability, bereavement, intervention, clinical psychologyAbstract
AbstractThis study aimed to explore the current clinical psychology approach in supporting bereaved adults with intellectual disability (ID). As the literature in this area is limited, report of real clinical practice may enhance our understanding of the usual role of clinical psychologists, and any factors which may shape this. Semi-structured interviews were carried out with six clinical psychologists and the resulting data analysed thematically. Findings identified the approach of participants when supporting bereaved adults with ID, as well as some factors affecting this, such as the impact of grief across support systems and the complexity of best practice in the absence of clear guidance. This absence of an evidence base to guide the clinical response in supporting bereaved adults with ID was identified as a source of professional concern for participants. Further guidance and resources, derived from high-quality research, are urgently required in order to address this issue.
References
Braun, V., & Clarke, V. (2013). Successful qualitative research: A practical guide for beginners. SAGE Publications.
Brickell, C., & Munir, K. (2008). Grief and its complications in individuals with intellectual disability. Harvard Review of Psychiatry, 16(1), 1–12. doi: 10.1080/10673220801929786
Bright, R. (1999). Music therapy in grief resolution. Bulletin of the Menninger Clinic, 63(4), 481–98.
British Psychological Society. (2011). Good practice guidelines on the use of psychological formulation. Retrieved from www.sisdca.it/public/pdf/DCP-Guidelines-for-Formulation-2011.pdf
.
Creswell, J. W. (2007). Qualitative inquiry & research design: Choosing among five approaches (2nd ed.). Sage Publications.
Currier, J., Berman, J. S., & Neimeyer, R. A. (2008). The effectiveness of psychotherapeutic interventions for bereaved persons: A comprehensive quantitative review. Psychological Bulletin, 134(5), 648–61. doi: 10.1037/0033-2909.134.5.648
Dodd, P., Guerin, S., McEvoy, J., Buckley, S., Tyrrell, J., & Hillery, J. (2008). A study of complicated grief symptoms in people with intellectual disabilities. Journal of Intellectual Disability Research, 52(5), 415–425. doi: 10.1111/j.1365-2788.2008.01043.x
Doka, K. J. (1989). Disenfranchised grief: Recognizing hidden sorrow. Lexington Books.
Dowling, S., Hubert, J., White, S., & Hollins, S. (2006). Bereaved adults with intellectual disabilities: A combined randomized controlled trial and qualitative study of two community-based interventions. Journal of Intellectual Disability Research, 50(4), 277–287. doi: 10.1111/j.1365-2788.2005.00759.x
Gilrane-McGarry, U., & Taggart, L. (2007). An exploration of the support received by people with intellectual disabilities who have been bereaved. Journal of Research in Nursing, 12(2), 129–144. doi: 10.1177/1744987106075611
Guerin, S., & Hennessy, E. (2002). Pupils’ definitions of bullying. European Journal of Psychology of Education, 17, 249–261. doi: 10.1007/BF03173535
Irwin, L., O’ Malley, G., Neelofur, S., & Guerin, S. (2017). An exploration of clinical psychology’s response to parental bereavement in adults with intellectual disability. Journal of Applied Research in Intellectual Disabilities, 30(6), 1065–1075. doi: 10.1111/jar.12380
Joffe, H. (2012). Thematic analysis. In D.Harper, & A.Thompson (Eds.), Qualitative research methods in mental health and psychotherapy: a guide for students and practitioners. Wiley-Blackwell.
Klass, D., Silverman, P. R., & Nickman, S. L. (1996). Continuing bonds: New understandings of grief. Routledge.
Kloeppel, D., & Hollins, S. (1989). Double handicap: Mental retardation and death in the family. Death Studies, 13(1), 31–8. doi: 10.1080/07481188908252277
Meeusen-van de Kerkhof, R., van Bommel, H., van de Wouw, W., & Maaskant, M. (2006). Perceptions of death and management of grief in people with intellectual disability. Journal of Policy and Practice in Intellectual Disabilities, 3, 95–104. doi: 10.1111/j.1741-1130.2006.00060.x
Robson, C. (2011). Real world research, (3rd ed.). John Wiley & Sons.
Schwartz Center for Compassionate Healthcare. (undated). Schwartz Center Rounds. Retrieved from www.theschwartzcenter.org/supporting-caregivers/schwartz-center-rounds
.
Stroebe, M. S., Hansson, R. O., Stroebe, W., & Schüt, H. (2001). Handbook of bereavement research: Consequences, coping, and care. American Psychological Association.
Stroebe, M. S., & Schüt, H. (1999). The dual process model of coping with bereavement: Rationale and description. Death Studies, 23(3), 197–224. doi: 10.1080/074811899201046
Tolstikova, K., Fleming, S., & Chartier, B. (2005). Grief, complicated grief, and trauma: The role of the search for meaning, impaired self-reference, and death anxiety. Illness, Crisis, and Loss, 13(4), 293–313. doi: 10.1177/105413730501300402
Wetherell, J. L. (2012). Complicated grief therapy as a new treatment approach. Dialogues in Clinical Neuroscience, 14(2), 159–66.
Worden, J. W. (2009). Grief counselling and grief therapy: A handbook for the mental health practitioner (4th ed.). Routledge.
