Researching the bereaved

United Kingdom Transplant Service Support Authority Statistics prepared by UKTSSA from the National Transplant Database maintained on behalf of the UK transplant community Bristol, UK: Statistical Services, September.

Cowles, K V. 1988. Issues in qualitative research on sensitive topics.. Western Journal of Nursing Research, 10: 163–179.

Smith, L. 1992. Ethical issues in interviewing.. Journal of Advanced Nursing, 17: 98–103.

Lee, R M. 1993. Doing Research on Sensitive Topics London, UK: Sage.

de Raeve, L. 1994. Ethical issues in palliative care research.. Palliative Medicine, 8: 298–305.

Kvale, S. 1996. Interviews: An introduction to qualitative research interviewing Thousand Oaks, CA, USA: Sage.

Stroebe, M and Stroebe, W. 1989. Who participates in bereavement research? A review and empirical study.. Omega, 20: 1–29.

Stroebe, M and Stroebe, W. 1993. “The mortality of bereavement: a review.”. In Handbook of Bereavement: Theory, research and intervention Edited by: Stroebe, M, Stroebe, W and Hansson, R O. 175–195. Cambridge, UK: Cambridge University Press.

Coupe, D. 1991. A study of relatives', nurses' and doctors' attitudes to the support and information given to the families of potential organ donors [Thesis] Cardiff, UK: University of Wales College of Medicine.

Tymstra, T J, Heyink, J W, Pruim, J and Slooff, M JH. 1992. Experience of bereaved relatives who granted or refused permission for organ donation.. Family Practice, 9: 141–144.

La Spina, F, Sedda, LPizzi, C. 1993. Donor families' attitude toward organ donation.. Transplantation Proceedings, 25: 1699–1701.

Pelletier, M. 1993. The needs of family members of organ and tissue donors.. Heart and Lung, 22: 151–157.

Parkes, C M and Brown, R. 1972. Health after bereavement: a controlled study of young Boston widows and widowers.. Psychosomatic Medicine, 34: 449–461.

Fulton, J, Fulton, R and Simmons, R G. 1987. “The cadaver donor and the gift of life.”. In Gift of Life: The effect of organ transplantation on individual, family, and societal dynamics Edited by: Simmons, R G, Marine, S K and Simmons, R L. 338–376. New Brunswick, NJ, USA: Transaction Books.

Morton, J B and Leonard, D R. 1979. Cadaver nephrectomy: an operation on the donor's family.. British Medical Journal, i: 239–241.

Parkes, C M. 1995. Guidelines for conducting ethical bereavement research.. Death Studies, 19: 171–181.

Caplan, A L. 1994. “On privacy and confidentiality in social science research.”. In If I Were a Rich Man Could I Buy a Pancreas? and other essays on the ethics of health care Edited by: Caplan, A L. 71–84. Bloomington, IN, USA: Indiana University Press.

Goffman, E. 1973. “The mortification of self.”. In Conformity, Resistance and Self-determination Edited by: Flacks, R. 175–188. Boston, MA, USA: Little, Brown.

Hutchinson, S A, Wilson, M E and Wilson, H S. 1994. Benefits of participating in research interviews.. IMAGE Journal of Nursing Scholarship, 26: 161–164.

Soukup, M. 1991. Organ donation from the family of a totally brain-dead donor: professional responsiveness.. Critical Care Nursing, 13: 8–18.

Cartwright, A and Seale, C. 1990. The Natural History of a Survey 36London, UK: King's Fund.

Sandelowski, M. 1991. Telling stories: narrative approaches in qualitative research.. IMAGE Journal of Nursing Scholarship, 23: 161–166.

Parahoo, K. 1997. Nursing Research: Principles, process and issues London, UK: Macmillan.

Payne, S and Westwell, P. 1994. Issues for researchers using qualitative methods.. Health Psychology Update, 16: 7–9.

Holloway, I and Wheeler, S. 1996. Qualitative Research for Nurses London, UK: Blackwell Science.

Stroebe, M and Stroebe, W. 1985. “Social support and the alleviation of loss.”. In Social Support: Theory, research, and applications Edited by: Sarason, I G and Sarason, B R. 439–462. Dordrecht, The Netherlands: Martinus Nijhoff.

Stroebe, W and Stroebe, M. 1987. Bereavement and Health: The psychological and physical consequences of partner loss Cambridge, UK: Cambridge University Press.

Littlewood, J. 1992. Aspects of Grief: Bereavement in adult life London, UK: Routledge.

Stylianos, S K and Vachon, M LS. 1993. “The role of social support in bereavement.”. In Handbook of Bereavement: Theory, research and intervention Edited by: Stroebe, M, Stroebe, W and Hansson, R O. 397–410. Cambridge, UK: Cambridge University Press.

Walter, T. 1996. A new model of grief.. Mortality, 1: 7–25.

Robson, C. 1993. Real World Research: A resource for social scientists and practitioner researchers Oxford, UK: Blackwell.

Coyle, A and Wright, C. 1996. Using the counselling interview to collect research data on sensitive topics.. Journal of Health Psychology, 1: 431–440.

Finch, J. 1984. “‘It's great to have someone to talk to’: the ethics and politics of interviewing women.”. In Social Researching: Politics, problems, practice Edited by: Bell, C and Roberts, H. 70–87. London, UK: Routledge and Kegan Paul.